It’s been a while since I updated anything. It’s been a busy week. We have had a lot of appointments for me and Zach. I had labs done and they found high levels of things that shouldn’t be high. Granted that a couple of them are just like .1% above where they should be. I think it’s kind of silly but the Dr. didn’t. So I have been put on a Low fat high fiber diet. It’s going to take some change on my part but its good because cannot afford to go out to eat at all anymore. I can control what I put in my body. The one thing I am having a REALLY hard time giving up is my Pepsi. That seems to be my crutch when it comes to stress. When I get sad or depressed or stressed out that’s the first thing I reach for. I am not a big fan of vegetables so I am going to have to learn how to like them. Hopefully if I follow what the Dr. wants me to do, my body will return to normal.
Zach had some appointments too. We had his Well toddler appointment on Wed. He is doing so well. The Dr was so excited for him. He is growing perfectly and is getting stronger and stronger every day. He did put in orders for an MRI and EEG. He wants to make sure that everything is still okay with his brain and seizures. Zach has been off Seizure meds for a couple of months now and he wants to make sure that he is not having abnormal brain activity like he was a year ago. It’s been over a year since we started having problems and they just want updated results. I got those scheduled for next week. He has to be sleep deprived for one and sedated for another. Wish me luck.
We have noticed that Zach’s Speech has regressed a little. They are concerned of a couple of things happening. 1, He is losing hearing which is making it hard for him to hear what we are saying. 2, He is having seizures again that we cannot see so that is taking up enough brain energy that Talking is being sacrificed, or 3, because of his brain bleeds his brain doesn’t understand what his ears are suppose to do in connection with his mouth. We have an appointment with Early Intervention, Speech and hearing therapists to see if they can figure out what is going on. I am not too worried about all of this. I am just glad that they are going act fast on it instead of sitting on their thumbs. That has been a problem in the past.
I am not looking forward to all the tests that we have next week. I will be doing a lot of them alone with Emily. It’s going to be interesting to try to keep her entertained while Zach is sedated and trying to wake up. Any help with a babysitter would be appreciated.
